Donate to DEBRA Ireland - Arctic Challenge 2020, organized by Mary-Jane Halpin
Donate to DEBRA Ireland - Arctic Challenge 2020, organized by Mary-Jane Halpin
Sep 28, 2019
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Debra Ireland - The Butterfly Skin Charity on Reels
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Debra Ireland - The Butterfly Skin Charity on Reels
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Debra Ireland - The Butterfly Skin Charity on Reels
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Debra Ireland - The Butterfly Skin Charity on Reels
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Join Colin Farrell's art class! | Debra Ireland - The Butterfly Skin Charity
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Join Colin Farrell's art class! | Debra Ireland - The Butterfly Skin Charity
109.3K viewsOct 18, 2016
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Be part of a unique and unforgettable adventure. See the wild side of Kerry while making life long friends and raising much needed funds for people living with EB. | Debra Ireland - The Butterfly Skin Charity
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Be part of a unique and unforgettable adventure. See the wild side of Kerry while making life long friends and raising much needed funds for people living with EB. | Debra Ireland - The Butterfly Skin Charity
20.8K viewsFeb 12, 2020
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@claudia_scanlon114 (14) is just like every other 14 year old who loves going out, doing her make-up and meeting up with friends. But, she also lives with the painful skin condition EB (epidermolysis bullosa). Support Claudia by texting BUTTERFLY to 50300 to donate €4 to DEBRA Ireland. (Text costs €4. DEBRA Ireland will receive a minimum of €3.60. Service Provider: LIKE CHARITY. Helpline: 076 6805278) #SeeMeNotEB #EBweek #cureEB EB Week 22 - 28 October 2018. Pick up EB butterfly tattoos in every
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@claudia_scanlon114 (14) is just like every other 14 year old who loves going out, doing her make-up and meeting up with friends. But, she also lives with the painful skin condition EB (epidermolysis bullosa). Support Claudia by texting BUTTERFLY to 50300 to donate €4 to DEBRA Ireland. (Text costs €4. DEBRA Ireland will receive a minimum of €3.60. Service Provider: LIKE CHARITY. Helpline: 076 6805278) #SeeMeNotEB #EBweek #cureEB EB Week 22 - 28 October 2018. Pick up EB butterfly tattoos in every
22.8K viewsOct 19, 2018
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Cora was brilliant, fiery and hilarious. EB took so much, but never her light. Light a virtual candle in her memory - or for someone you love. Your show of support will provide light and hope to families facing EB this Christmas. | Debra Ireland - The Butterfly Skin Charity
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Cora was brilliant, fiery and hilarious. EB took so much, but never her light. Light a virtual candle in her memory - or for someone you love. Your show of support will provide light and hope to families facing EB this Christmas. | Debra Ireland - The Butterfly Skin Charity
19.4K views6 months ago
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Dublin GAA hero supports EB heroes. Please join Dean Rock and please text BUTTERFLY to 50300 to donate €4 to DEBRA Ireland. (Text costs €4. DEBRA Ireland will receive a minimum of €3.60. Service Provider: LIKECHARITY. Helpline: 076 6805278.) #SeeMeNotEB #EBWeek Tattoos available in every @Applegreen. http://bit.ly/donatetoEB EB (epidermolysis bullosa) is a painful skin condition. | Debra Ireland - The Butterfly Skin Charity
27.6K viewsOct 18, 2018
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EB warrior Claudia will be on RTÉ One Nationwide tomorrow, Friday 23 November, from 7pm. Please make sure to tune in. Everybody should watch this incredibly brave young woman who not only lives with the worst condition you've (probably) never heard of, but is also a powerful advocate for anyone living with a disability. #SeeMeNotEB Text BUTTERFLY to 50300 to donate €4 to DEBRA Ireland. (Text costs €4. DEBRA rec min €3.60. Service Provider:LikeCharity. Helpline: 0766805278). | Debra Ireland - The
22.2K viewsNov 22, 2018
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Be part of Claudia’s Army at this year’s Vhi Women's Mini Marathon. Claudia is taking part with mum Liz in her wheelchair and it’s not going to be easy but she's up for the challenge! To celebrate Mother’s Day, please sign up with your mum, daughter or friends and let’s make this the best year ever for superheroes like Claudia and all families living with EB! http://bit.ly/MiniMarathon2019 EB (epidermolysis bullosa) is a painful skin condition. Children are born with skin that blisters at the sl
10.9K viewsMar 29, 2019
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This is 🦋Emma🦋. When she was born, her parents were told she wouldn't last a week. Because of the continued support from her family and the EB community, she is now 35 years old and living the best life she can live 💪. Your support matters to her and all those with EB. You will never meet braver people than those living with EB (epidermolysis bullosa). | Debra Ireland - The Butterfly Skin Charity
93.6K viewsOct 23, 2019
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“A few years ago, I asked my daughter Aoife and her friends to pick out a charity and they came across children with the ‘Butterfly Skin’ condition EB, so since then, we’ve raised around €50,000 for DEBRA Ireland. It is a fantastic charity. When I began to learn more and meet the people who have this truly awful condition, I wanted to do something to help.” – Ken Carraher. Ken (who has always been afraid of the dark!) has been using thousands of props and lights to create a spooky Halloween Hous
2.8K viewsOct 28, 2022
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Charlie Curran Annual Memorial Run. Sunday 29 January. All proceeds to DEBRA Ireland and Féileacáin. | Debra Ireland - The Butterfly Skin Charity
852 viewsJan 18, 2023
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Debra Sandlund ~ Complete Wiki & Biography with Photos | Videos
Jul 21, 2019
alchetron.com
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Good luck Johnny! From Emma Fogarty, the EB community and all of us in Debra the very best of luck to our amazing ambassador Johnny Sexton and the Ireland rugby team in today's game against South Africa. All of Ireland is behind you. You can do it! 🇮🇪💚 | Debra Ireland - The Butterfly Skin Charity
2.2K viewsSep 23, 2023
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Debra Ireland invites brave volunteers to walk on fire for sick children - Extra.ie
Jul 2, 2022
extra.ie
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🦋 Emma Fogarty’s story of courage, resilience, and living life beyond limits. Debra Patient Ambassador and Board Member, Emma Fogarty, has launched her autobiography Being Emma: Living My Best Life with Butterfly Skin — a raw, powerful and deeply moving account of her journey with EB. “My mother tells me that when I was born the room fell deathly silent. She knew something was wrong, but she didn’t know what. Neither did the nurses, nor the doctor they rushed to find. That silence didn’t last b
4.6K views7 months ago
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👟 RUN TO 40 CHALLENGE: Walk, run, or roll 40 kilometres your way for Debra! Tackle it all at once or split it up to suit your schedule. No matter where you are or your fitness level, you choose when and where to complete your 40k | Debra Ireland - The Butterfly Skin Charity
1.9K viewsSep 16, 2024
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Ireland captain and Debra Ireland - The Butterfly Skin Charity ambassador Johnny Sexton on Six Nations, World Cup and life after rugby. From The Late Late Show | RTÉ Sport
25.5K viewsFeb 20, 2023
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HERE WE GO! What a send off! Colin Farrell kicking off the Irish Life Irish Life Dublin Marathon for Emma Fogarty and everyone impacted by epidermolysis bullosa (EB). C'MON EMMA!🧡🦋 Donate here ➡️ debra.ie 2 m | Debra Ireland - The Butterfly Skin Charity
34.7K viewsOct 27, 2024
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Join us on Friday 22nd November for a coffee (or tea) in aid of Debra Ireland - The Butterfly Skin Charity, our charity partner🦋 €1 from the sale of each coffee and tea on the day will go to Debra.* Debra is an incredible charity committed to helping those affected by the painful and incurable condition of Epidermolysis Bullosa (EB) or Butterfly Skin. Help us to make a difference on November 22nd.💙 *in participating stores. #MACEIreland #CoffeeDayForDebra | MACE Ireland
86.2K viewsNov 11, 2024
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Casey is just 5 years old. She was born with EB - a painful incurable skin disease that leaves her with agonising blisters that take weeks to heal. This is her EB Awareness Week story. Be part of the #ButterflyEffect for EB Awareness Week. Text BUTTERFLY to 50300 to donate €4 to DEBRA. http://bit.ly/Donate_EBAW (Text costs €4. DEBRA Ireland will receive a minimum of €3.25. Service Provider: LIKECHARITY. Helpline: 076 6805278) | Debra Ireland - The Butterfly Skin Charity
82.5K viewsOct 20, 2017
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Every move hurts. Every day brings new blisters. If you admire Claudia’s strength, comment “🧡” now to show your support. "There is no sugar coating it — life with EB is tough." For Claudia, pain is her “constant companion” — but she’s still chasing her dreams, and making them happen. | Debra Ireland - The Butterfly Skin Charity
31.8K views9 months ago
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The bravest 14 year old you'll ever meet. Please watch and support EB Week for children like Claudia living with EB (epiermolysis bullosa) - a painful skin condition. Text BUTTERFLY to 50300 to donate €4 to DEBRA Ireland. Donate: http://bit.ly/donatetoEB (Text costs €4. DEBRA Ireland will receive a minimum of €3.60. Service Provider: LIKECHARITY. Helpline: 076 6805278.) | Debra Ireland - The Butterfly Skin Charity
12.4K viewsOct 9, 2018
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Some good news, closer to home. 🧡 When Deirdre, Debra’s Head of Family Support, told us our community survey results were in, we really wanted to hear what people living with EB had to say. And what they said was deeply moving. What they said reminded us why we do this work, and why your support matters so much. Without it, Debra simply wouldn’t exist. And that’s the truth. That doesn’t happen by accident. It happens because of you. Your support makes Debra possible. And it makes a real differe
779 views4 months ago
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"When they said ‘she can’t’…she said ‘I can.’" LIKE 👍 if you believe nothing should hold us back 💪. 🎓 College graduate 💄 Makeup artist 💼 Thriving career 💪 Fighter Claudia has achieved so much despite EB — and she’s not done yet. React 👍 if you believe nothing should hold us back. | Debra Ireland - The Butterfly Skin Charity
51.6K views9 months ago
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So incredible to see the amazing work EB Research Partnership are doing with co-founders Eddie Vedder and his wife Jill. EB Research Partnership (EBRP) is dedicated to funding research aimed at treating and ultimately curing epidermolysis bullosa. It is the hope of all those working with and caring for those living with EB to one day find a cure - and the key to this is research 💙 | Debra Ireland - The Butterfly Skin Charity
1.3K viewsJan 25, 2021
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They did it! Watch as Rachel and Sam abseil 150ft down Croke Park for Casey and all those impacted by EB. Even though Rachel has a fear of heights, she wanted to be tough for her daughter Casey, who has to be tough every day. Casey was there, along with her big brother Jayden and family members, to cheer them on. 🧡 "We were so nervous beforehand, we both felt sick, but we pushed ourselves out of our comfort zones and remembered why we were doing it.” Casey’s auntie Sam. We’re so proud of Rachel
14.6K viewsApr 2, 2024
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EB warriors Liz Collins and Claudia give a powerful interview on today's Sean O'Rourke Show on the realities of living with EB. Claudia, who's now in secondary school, spoke so openly about how tough it is for young people who have to live not only with the physical pain and itch caused by EB but also the constant staring. She's an incredible ambassador for young people living with EB. Liz and Gary, you should be very proud of her! | Debra Ireland - The Butterfly Skin Charity
9.6K viewsNov 17, 2016
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Every day of her life, Claudia has lived with pain. Born with the skin blistering condition EB, she endures painful daily bandage changes which can last hours. Currently there is no cure. She knows she has to make every moment count. Because without treatments, without a cure, her EB will continue to progress. Claudia - one of the bravest people you’ll ever meet 💙 That’s why your support is so important. DEBRA Ireland is funding research and getting so much closer to new treatments and even a c
33.4K viewsAug 31, 2021
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