Parents of kids who elope can feel this one! Eloping is when our kids run away without any fear of danger or safety awareness. It’s a huge problem in the intellectual disability community, as you often see on the news- a child or person with autism or some other developmental disability goes missing and is often found in a pond or lake. I don’t know why our kids elope, other than just natural curiosity mixed with no sense of safety awareness, but it’s so scary, and we live at a level of alertnes
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Parents of kids who elope can feel this one! Eloping is when our kid…
17.7K views6 months ago
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1. Work looks different now— Schedules change, flexibility becomes essential, and careers don’t always move the way we planned. 2.All the “quick” appointments— That actually mean taking off work, driving across town, paying for parking, and eating out again. 3.Extra supports that quietly add up— Therapies, specialists, tools — often a mix of covered, partially covered, or not covered at all. 4.Childcare that’s hard to find — or impossible— So breaks, errands, and date nights quietly disappear. 5
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1. Work looks different now— Schedules change, flexibility beco…
375.3K views5 months ago
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When we had Katie and Madison, we were not a part of the disability community, and we’ve learned A LOT in just 7 years. The biggest thing we’ve learned is: You don’t get to judge a family when you don’t live their reality. -You have no idea if the mom scrolling her phone might be filling out patient forms for the next appointment or researching a new diagnosis. Or she might just be scrolling- both are valid! - the child who is lashing out or making loud noises might be struggling to regulate the
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When we had Katie and Madison, we were not a part of the disability co…
149.1K views5 months ago
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Love doesn’t always need words ❤️ Katie and Madison both have Down Syndrome and Autism, and for now they are mostly non-speaking. We’ve never had a whole conversation, and I don’t know if that will happen. What we’ve found though, is that they know a LOT of other ways to make themselves known. All of the nuance with communication is hard and complicated, but there is a connection between our family that goes beyond spoken word ❤️ #specialneedsfamily #specialneedsparenting #compassion #autism #do
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Love doesn’t always need words ❤️ Katie and Madison both have …
111.6K views7 months ago
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My favorite part of this video is her “scared” face 😮 How do your kids regulate themselves? Our girls seem to prefer rocking and hand movements, but they change over time. #stimming #toniesbox #regulation #disabilityparenting #lovetoseeit | Sarah Robinson
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My favorite part of this video is her “scared” face 😮 How do your kids r…
6K views5 months ago
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This was a new one for us! I feel like we’ve experienced a LOT of embarrassing things and have learned not to care too much about it, but i definitely didn’t expect Katie to lick Santa’s face!! He was very gracious, and didn’t skip a beat. Thanks for making her evening Santa! #therealsanta #sensoryseeker #merrychristmas #twinswithdownsyndrome #downsyndrome #autism | Sarah Robinson
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This was a new one for us! I feel like we’ve experienced a LOT of embar…
27.5K views6 months ago
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Four is a lot of kids 🤣 Again, we’ve been getting the comments asking if Harper and Charlotte also have Down Syndrome (a third copy of the 21st chromosome, therefore the 47 chromosome count) And the answer is no- Charlotte doesn’t have Down syndrome, or mosaicism, or anything like that. They look alike because they are SISTERS. A common misconception about Down Syndrome is that they all look alike, and there are some common facial features, but the truth is that people with Down Syndrome look m
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Four is a lot of kids 🤣 Again, we’ve been getting the comments askin…
154.6K views6 months ago
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Four is a lot of kids 🤣 Again, we’ve been getting the comments askin…
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Here we go 👇 I am aware that a lot of times the people who comment o…
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Our family priorities right now (in no particular order) are: - Keeping ev…
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On Christmas Day, Katie and Madison opened only a few thing…
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If you are a parent this Christmas who is trying to discern what to ge…
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Understanding Down Syndrome in Our Family
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Rituals reed diffuser #rituals #reeddiffuser #homefragrance #ho…
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This might be my new favorite video 🤣🥰💃 #dance #sisters #downsyndrome …
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